Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Tuesday, August 27, 2013

Long summer break

Hey ya'll! I know its been a while. We've had a long an interesting summer and I haven't had much time to myself lately. At the end of May we moved from Idaho to Maryland, leaving behind all our friends for a new journey. Its been a rough transition. Eva is taking it all in stride being only 18 months old now, but Tabitha has had a hard time. She misses her friends. I've had a rough time as well. I miss my friends. I miss having such an awesome support structure. I also really miss Rexburg. I miss the feel of it. Everyone was a member of the church, you weren't bombarded with inappropriate clothing or language everywhere you go. You didn't have to navigate the hundreds of people smoking at every exit, everywhere you go. There was also the feeling of community. Almost everyone in our complex would spend the afternoons outside chasing our kids together and helping each other out. I really miss that.
Maryland is beautiful. The trees are amazing, I love that there are little ponds everywhere. I love that there is so much historical significance to teach my kids. I love that I can take them to the smithsonian and teach and show them so many things I couldn't have back in Idaho. I have better medical care for Tabitha here. We have started the process to get Tabitha into ABA therapy and into preschool. There are so many programs that will help her that we couldn't get back in Idaho. Morgen has a great job. He just finished his training and will soon be starting actual work, which he is excited about.
I haven't had much time or a place to sew and most of my stuff is still back in Idaho in our storage unit, which is kind of a pain.
I really hope to get back to crafting, and writing soon. I pulled out a dress that I started when Tabitha was 18 months old. I will hopefully finish it soon so Eva can wear it. I have actually made a different version of this dress (its my own pattern) before and I have been wanting to write a pattern for it so you all could make one too so that is my current goal.
When we moved to Maryland from Idaho we couldn't come out first to find a place so we had to hope that we would find something good like we did when we moved to Idaho. Unfortunately it didn't work out that way. We ended up in an awful place that was dirty and starting to fall apart. We were able to move again to a much nicer place but it was a stressful move and cost all we had to make a second move.
We are trying to get settled now and will hopefully get back to our regular routine soon.
Not that this has anything to do with the post, its just a fun picture we took before leaving rexburg. 

Tuesday, February 19, 2013

a range of emotions

When you have kids you start out thinking that your kid will be president or a Dr and all you see is endless possibility. Babies are endless possibility, they are joy, and love and passion. They are dreams come true and all you want is for their dreams to come true. All you want is for your children to be happy and fulfilled. Every parent thinks their kid is specials and gonna change the world. I've always known Tabitha was special, every time she did anything new I always thought she was the smartest kid in the world. She was the best kid ever and after waiting for her for so long she was the perfect kid. Tabitha is my sunshine, she is the light that came from darkness. She is what I waited so long for. But for the last year her light has had a cloud over it. One I had a hard time dealing with. She has had violent fits, crying outbursts, she changed from my happy sweet girl. I took her to the dr time and time again, but they just said moodiness was normal, she was fine. They blew me off time and again. But I knew something was wrong. Every day I watched her grow further and further away from us, that she was changing.
We dealt with the fits and the violent outbursts, we started pulling away from our friends. We stayed home and stopped doing play dates for fear that Tabitha would hurt someone with one of her fits. We started noticing that when someone got hurt she showed no empathy, she would say sorry and give a hug out of some sort of memorized protocol. We noticed that she wouldn't look people in the eye and when she did catch their eye she would freak out. A few months ago she was tested at preschool, and she was tested at an almost 9 year old receptive vocabulary, but she can't use it, and she gets very frustrated when she can't express herself.
There are other things that we noticed, and we tried talking to drs about, but it was just the same old song and dance from them. I finally decided to switch drs. About two weeks ago I took Tabitha to our new dr to talk about what was going on. Things had been getting worse with her for some time. I had bruises, bloody noses, and dislocated fingers to show for it. I'd had enough, I needed answers. I was tired of being afraid of my child, and afraid for her. I needed help.
I sat down with her dr and discussed my concerns and fears.I finally found someone who would listen. I finally found someone who agreed that her fits were not that of a normal 3 1/2 year old. Then he said what I feared he would say. Tabitha is on the autism spectrum. I think I knew for a while, but I had convinced myself it was something else, maybe bipolar or something like that. Something that can be "fixed" with medicine. I wasn't surprised, but I did cry when I got to the car with the girls. I had a hard time not believing it was my fault. With all the junk science, blaming mothers for having epidurals, and c-sections, and vaccinating their children. Even though I know its not my fault, I still blame myself. I think its natural for parents to think anything that happens to their kids is their fault. But while we have been waiting to meet with the therapist and get some diagnostic tests done on Tabitha, I finally stopped thinking that this was something that "happened" to Tabitha, and started realizing that there's nothing "wrong" with my daughter, her brain just works different than other kids.
For the past two weeks Morgen has been trying some tactics he learned from ABA therapy when he used to worked with a friends son who has autism. They seem to be working. Tonight we met with the therapist, he asked lots of questions and listened to our concerns. He stopped short of saying she is autistic, but said he believed she is on the spectrum. She is high functioning, and he said she seems like with the right interventions, she will be ok. We will go back next week for more evaluations, and to talk about our next steps.
I have a range of emotions going through me for the last two weeks. I'm scared, I worry that people wont be accepting of Tabitha, that she will be shunned because shes a little weird and she freaks out at things most kids would let roll off their backs. I'm happy that we are on a path to helping her. The only thing I want in this life is for my children to be happy. I will do whatever it takes to make my children happy. Now that i have some sense of how to help her, I know we will all be ok.
Over the last few weeks, we haven't told too many people about whats going on. But of the few people we have told almost all have been really supportive. They have been true friends. They have been there for me, and they have loved Tabitha and they have been a shoulder for me to cry on. I'm thankful for our friends who have helped us. I'm thankful for the friends who helped me talk through this, who have shown me what real friends are. There are a lot of emotions going though me, there are a lot of unknowns in our future, but one thing I do know, is that Tabitha is loved.

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